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Neuromuscular disorders

• - link to AUSNMD websiteÌý
• Duchenne muscular dystrophy (DMD)
• DMD information for carriers
• DMD and creatine monohydrate
• Charcot-Marie-Tooth disease (CMT)

Resources for families

• Hydrotherapy for children with neuromuscular disorders

Neuromuscular Clinic appointments at The Royal Children’s Hospital

Resources to support you and your childÌý

• What to bring
• Visiting neuromuscular clinic - plain language summary
• Visiting neuromuscular clinic - social story
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• Updated referrals: a referral from your GP is required every 12 months
  

If you are seeing a physiotherapist

• Visiting the physiotherapist in neuromuscular clinic - social storyÌý
  
• Wear clothes suitable for exercise or physical assessment (eg trainers, t-shirt and shorts or tracksuit)
• Bring any splints or orthotics so they can be reviewed
• Bring contact details for school or community therapistsÌý

If you are seeing a respiratory consultant

• Bring along your CPAP/Bi-PAP equipment to ensure the machines are regularly serviced and to check for adequate mask fit

Other information

• Please take a look at the Specialist Clinics page
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